My Daughter's Rare Disease Was A Mystery For Years. Here's How We Finally Got A Diagnosis. - HuffPost

“'Give her time and she’ll surely catch up,' they said. 'She’ll be fine.' ... When Dalia was 9, she lost her ability to walk, talk, eat, and breathe without a ventilator."

Dalia, the author's daughter, at 15. If youre not a rare disease specialist, or among the 2 in 1,000,000 people afflicted with MERRF syndrome, Im guessing youve never heard of my daughters illness. … [+6565 chars]

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